Zoom zoom. When I think of Mari and her constant energy, I think of her zoom zooming all over the place. She was constantly on the go doing something. Mari would be in her room playing. She lined up whatever it is she's playing with. Then she would flap her little arms and go, "Aaaaaaaaaaaaaaaaa." I still don't know exactly why she did that but I think maybe she just needed to make her sounds. It helped her in someway. As she would draw on her Magna Doodle drawing whatever new picture she was … [Read more...]
W is for Water #atozchallenge
Mari and water, a dynamic combination. Mari loved being in, playing in, basically anything to do with in the water. From the time Mari was a baby, she loved to go swimming. My husband's family was always amazed that I could put her in the swimming pool and she had the time of her life. She didn't mind if the water got in her face. She just giggled and had a blast. As most of you know I've been writing a book about what happened with our little girl. In the book there is a dedication section … [Read more...]
U is for Unique #atozchallenge
A uniquely different kind of girl. Mari had one of those personality that sticks with you. If you'd met her, you remember her for the spunky little thing that she was. She rarely got upset but when she did you heard about it. She'd be playing with a toy and every seemed to be going fine when all of a sudden she'd scream at whatever it was she was playing with or doing, then either throw it or destroy whatever it was she was making. I know so many children who have autism have meltdowns on a … [Read more...]
R is for Remember #atozchallenge
It's hard not to remember such a remarkable little girl as Mari. I know that I might be a tad bit biased, but I also know how this one little girl touched so many people's lives in ways I never could have imagined. In the two weeks prior to Mari contracting E. coli, she was in a special summer school program as well as a camp for special needs children. She went to summer school Monday through Thursday until around 1pm and then a bus picked her up and took her to camp. On Friday's she got to go … [Read more...]
M is for Mari’s World
Mari's World. What would it have been like to visit her world? It constantly brought a smile to her face. She'd be zone out sitting in her chair. You'd wave your hand in front of her face and she wouldn't flinch. You have to clap your hands really loud two or three times to bring her back to our world. I wondered if she'd be playing in some puddles getting all wet. Or maybe she met Dora and went on a new adventure taking Backpack and Diego along with. Or maybe she went on another adventure with … [Read more...]
I is for Independent
Little Miss Independent is what we used to call Mari. She had a very big independent personality. She preferred to play by herself, watch movies by herself, just about anything by herself. I could sit there, sometimes, and just watch her playing on the floor with whatever it was she was playing with and be utterly content. That is until something didn't go the way she liked or wanted and then we heard about it. She get all upset, start to scream, and then it usually resulted in her messing … [Read more...]
D is for Determined
Mari was one of the most determined people I knew. While she may have had autism it didn't ever stop her when she wanted to do something. The only problem with that is her safety awareness, while she was 8 years old, was that of about a toddler. When she wanted to do something, it was amazing to see how she tried to accomplish it, of course, almost always after the fact is when I'd find out what her little determined mind decided she was going to do. One of the memories, that now brings a … [Read more...]
Day 149: The DVD in Your Head
Whether you are a writer or not have you ever had an idea that just goes round and round in your head until you do something about it. As a writer, it might be your story and your characters constantly talking to you. Or maybe a scene that is playing out before you. For me, I've relieved what happened to Mari in the hospital more times than I can remember. It's something that's always there and can easily be brought to mind. I think it's because it will forever be apart of me and is embedded … [Read more...]
KLove on the brain…
It seems the last few things I've written have been because of KLove being in the background here recently. It's good to have uplifting songs playing. Last night a song came on that I've heard before, but for some reason the words really struck me this time. The song begins like this: To everyone who's lost someone they love Long before it was their time You feel like the days you had were not enough when you said goodbye How many times have I heard, or thought to myself for that matter, … [Read more...]
Day 119: Stillness
For me, I like to write in complete silence. No TV on. No music playing in the background. This is what works for me. My mind is clear. The words flow forth. I tend to get distracted if anything is happening around me. Writing in silence helps me to be a better writer. It’s the stillness around me that helps my creative juices to really flow forth. Sometimes as a parent we need that stillness, or quiet time, away from our children. It’s not that we don’t love them or don’t want them. We just … [Read more...]
