I swear Mari thought to herself, "Why walk when you can run," Sometimes I forget how much Mari was constantly on the run. She'd be watching TV and she'd run around while flapping her arms in excitement. Or reading a book and running around while she did it. Or playing with some toy that could make as much noise as possible and run around excited by the noise. It just didn't take much for her to run as you could see the freedom it gave her. So the next time you are feeling a little blue, try … [Read more...]
V is for Vivacious
Mari always had a vivacious personality that made her seem larger than life. I think back on Mari's life and I love how it seemed like when she was in the room she filled the room with spunk and spontaneity. She could always find something to do, especially when it involved things she wasn't supposed to do. For example, white walls were her canvas. And she wasn't picky with the instrument to use as she used colored pencils, crayons, pens, permanent markers, regular markers. You name it. … [Read more...]
U is for Unconditional
Mari showed everyone every day what true unconditional love really looked like. How much do we wish we could love someone unconditionally. I think the closest someone could truly love someone else this way is the parent/child relationship. When it came to Mari I loved her with all my heart. No matter how hard or difficult things could get I loved her. Sometimes in those moments of frustration you say things you don't mean. That is when the emotional roller coaster is leading the charge. If … [Read more...]
T is for Time
Mari's time may not have been long on this earth but the impression she made on those around her will last forever. When we think about a young child dying, the first thought that naturally comes to mind is they're too young too dye or they're time was too short or they aren't supposed to die before me. We are human and in our brains we can't wrap it around how not just a child, but any child for that matter, could die. Our hearts break any time we hear of one passing. Mari was no … [Read more...]
S is for Serious
Seriously, Mari was anything but serious. Autism. In and of itself is some pretty serious stereotypes. Children with autism don't show emotions, especially smiling and absolutely no laughing or giving of hugs. Eye contact. It doesn't happen. Concentration. Almost nonexistent. There are others as well but these ones are typically at the top of the list. I smile because not only did Mari have severe classic autism (on a scale of 1 to 10, Mari was between an 8 or 9), but she broke the mold … [Read more...]
R is for Remember
We will always remember our little angel who could flap her little wings and take flight in Mari's world. Remember. There is so much to remember about Mari. Her ability to make everything into a chewie toy. Whether she had her chewie tube on or her shirt sleeve, she found some way to chew on something. Preacakes. You might be wondering what in the world those are. They were Mari's word for pancakes. She loved them so much. She knew the ingredients needed to make them and she helped me to … [Read more...]
Q is for quest
Because in Mari's world I bet she was always on a quest to find some new adventure that lead her to Giggle Town. I laugh when I think of that line above. Mari always loved to retreat into her world. Sometimes I wish there could have been a way for me to go with her to see for myself what made her so happy as she visited her own Giggle Town. It was rare to see Mari sad. She could entertain herself for hours. Turn on a Backyardigans or Dora or Wonder Pets video and she was just happy. She … [Read more...]
P is for patient
Because Mari taught me how to be patient. I always tell people that God has given some people the gift of patience, but I'm not one of them. Since I can remember I've struggled with being patient. I guess using the cliché, "She has a short fuse," can be pretty accurate most of the time. The thing is having a daughter with autism doesn't exactly mesh with someone who doesn't have patience. So who do you think is going to have to change? The person with autism whom you can't communicate with … [Read more...]
